Minutes
Meeting Held January 15, 2005
Present: Kathleen Cady, Landra Carty, Laura Conway, Scott Conway, Rob McGuire, Chris McGuire, Blythe Stanfel
Absent: Cory Clasen, Sarah Clasen, Jolene Johnson, Judy Miller, Cheryl Stimson, Melinda White
Meeting Called to order at 1:12pm by President, Blythe Stanfel
DISCUSSION:
- Money in account: Current Balance approximately $4760.00.
-$500.00 of this will go for paying 5031C fee
-Enough money now to lose bank fee
2. Website:
-Incorporate special thanks and sponsor links
-Minutes from meetings to be placed on website
3. Scholarship:
-Members reviewed information and decision was made to remove all financial
Information from scholarship criteria.
- Scholarship application will be placed on website
- First scholarship of $500 to be offered for the 2005-2006 academic year
4. Legislation:
-January 26, 2005—Blythe will attend a lobbying day with the March of Dimes
To insure that the $3.00 charge added to newborn screening can not be taken away
- Newborn gift pack:
Already included from first meeting at U of Ia
-General information
-National PKU news newsletter and website information
-Copy of directory
-PKU video
-Bib
-scale
-low protein food list
-low protein cookbook
-lancets
The following will be included in the gift pack from the foundation:
-IPF onesie
-low protein cookbook
-list of age appropriate tips
-list of references
-list of contacts from IPF board
Ideas for future gift pack at 8 months of age or so:
-Low protein food samples: cookies, pasta, cheese sauce, peanut butter
6. Newsletter:
-Landra was given Print shop 2004 to begin the newsletter
-Newsletters will be distributed in March and October
-Kathy will do the first tip of the month: Refrigerator magnets and yes/no book
-1st profile child will be Brittany Conway
-Event profile in the 1st newsletter will include 2004 picnic and February 2005
water park event.
AGENDA
- 2005 event camping weekend with picnic at Saylorville.
- Ideas
Balloon maker
Cotton candy machine
Face painting
Snow cone machine
-Assignments
Kathy—contact food companies for donations
Rob/Chris—contact Dairy Queen for donation, research available camping area
and cost.
Landra—contact Dahl’s for donation
Sarah—pop donation
- Fall event in
Dubuque - Strategic planning update: Tami and Chris are working on submitting request for
grant from Iowa Clinics.
- Scott—contact Casey’s regarding printing prices for brochure
- Kathy will continue to research printing prices for brochure
- Laura will contact Wal-Mart corporate offices for donation
- Laura will contact Carol Johnson regarding insurance company and Medicare/Medicaid coverage on formula.
- Organization for 2005 summer event will be done via email and finalized at the next meeting.
Next Meeting set for May 15, 2005 at 1:00pm at the
Respectively Submitted:
Laura J. Conway
Board Secretary